What Will Your Dash Be?

No one knows how long we have but we should make the best of the time we do have. Life cannot be taken for granted. What will your dash be? You know – the dash between your birth date and the date of your death. It’s been a while since I’ve written a post and this is because my cancer came back. I again went through chemo and am now in a clinical trial with an oral medication that will hopefully prevent recurrence. While dealing with the “feeling like I’ve been hit in the gut again” emotions that go along with being told that the cancer was back, I took a good hard look at what my purpose must be to keep going through this. Some people say that I’m an inspiration, some say that I’m tough, and some people just don’t talk to me because they don’t know what to say.

Growing up, I was quite introverted and preferred to mingle with the wallpaper rather than talk to people. As I became an adult, I found myself working in jobs that required conversation with people and that helped break me out of my shell. After being diagnosed with cancer the first time, I truly didn’t care about being shy any longer. If nothing else – besides being a mom which is my greatest accomplishment – I think that one thing I have done is to try and raise awareness about ovarian cancer to anyone who will listen. My passion is advocacy. I have been to Capitol Hill four times in the last 2 1/2 years to talk to legislators. I have sent emails to legislators. I have spoken to nursing students as a part of the Survivors Teaching Students ® program to help change the medical profession’s outdated views on ovarian cancer. I have been interviewed by the local news. I next want to get involved in research advocacy because honestly, we need an early detection test and we need better treatment options.

What motivates me is that I don’t ever want any other woman to go through ovarian cancer. Sadly, many women do. My cancer is caused by a genetic mutation which runs rampant through one side of my family. I have been blessed by the kindness of strangers – thanks to the internet – to find support, knowledge, and strength to get through this insidious disease. Most women in my family have had breast cancer or ovarian cancer or both. One of those was a distant cousin that I met through email because we both battled ovarian cancer – her first, then me. Then she recurred, then I did. We exchanged emails about our treatments and surgeries and hopes and fears. She fought for 3 1/2 years before the cancer took her life a few days ago at the age of 40. She was so young but I have no doubt that her dash tells a great story about her life which included offering me support. I know how much she loved her daughter and that she never wanted her to face cancer. And now that my cousin is gone, I will continue to advocate so that her daughter may never have to deal with ovarian cancer in her lifetime. I don’t know how long I have but I want my dash to include that I did all that I could to help the next generation of women by raising awareness about the need for research for an early detection test and patient-targeted therapies to stop cancer in its tracks.  What will your dash be?

The Dash by Linda Ellis

The Dash by Linda Ellis

Angelsong is an amazing experience

Going through cancer and chemotherapy leaves most people with some battle scars – both those you can see and those you cannot – and there is often a heightened sense of anxiety at times.  During my own journey,  I have explored all sorts of alternative therapies including diet, herbal supplements, yoga, meditation, and music.  All of them have been very positive experiences for me.  I am open to just about any alternative idea that does not involve hallucinations or drugs.  I also believe that people cross our paths for a reason.  I have met many wonderful people in the last couple of years and one of them is Amy Robbins-Wilson.  

She literally lights up a room when she walks in and has the ability to draw people towards her.  As I’ve gotten to know her, I’ve learned that she possesses two Master’s degrees, she is a Reiki Master and Awakener, and she has the voice of an angel.  One of the more fascinating aspects about her is that she performs Angelsong Sessions for individuals and Angelsong Circles for a group of people. Ah, and what is Angelsong, you ask?  According to Amy’s website (link is below), Angelsong is “a form of energetic singing that is a combination of live a capella-inspired song and healing techniques. Amy opens transformational space through music” to assist people experiencing stress, grief, loss, or those looking for a sense of balance.  She sings over the person/people and smooths out energetic auras.   No, this is not based on science as we know it and it may sound wacky to some.  However, I have been able to experience an Angelsong session firsthand it was unlike anything I have ever experienced.  

The session began when Amy sat me down in a chair that faced a window overlooking the beautiful outdoors.  I closed my eyes and she started singing and moving about the space.  I have no idea how long I sat there because I got lost in her voice and my own meditation.   Afterwards, I felt such a sense of healing and peace.  The best analogy I can draw is that it is a spiritual yoga.  When I do yoga, I am so focused on what I’m doing and on my own breath that I cannot think of anything else and when the class is over, I feel a sense of peace.  This is the same feeling I had during and after the Angelsong session.  No anxiety, no jitters, and surprisingly, the nearly constant pain in my chest where my port had been was gone.  I have a back injury that has gotten worse over the years.  After the Angelsong session was over, my back pain was nearly gone, too.  It’s been a few days and neither pain has not come back.  I still feel centered, peaceful, and feel that I have found another method of healing.   I know, I know….some may say it’s a placebo effect or this can’t really happen because it makes no sense in the scientific world. Whatever it is, IT IS REAL.  If you get the chance, I highly recommend trying one of these sessions.  It is perfect for new moms, cancer patients, those in hospice, or anyone who needs some healing and balance.  It is one of the best therapies I have experienced and if you keep an open mind, it can help you, too.   Check her out at Amy’s website and if you’d like to hear her angelic voice, check out  Amy sings “I Remember You.”

 

 

lake yoga

Got de-ported – Now what?

I was de-ported last week.  Not in a Justin-Bieber-kind-of-way but in a medical-sort-of-way.  I had my one remaining IV mediport removed.   When I was originally diagnosed with ovarian cancer, I qualified for a clinical trial which required two ports – one was IP (intra peritoneal) and one was the traditional IV power port in the chest.  Due to clinical trial protocol, I had the IP port out as soon as I finished chemo.  My trial included Avastin treatments which went on for several more months so I kept the IV port.  Once Avastin treatments were over, I thought I’d have the IV port taken out right away.  However, after thinking about it, I opted to keep it.  I felt that it was my umbrella, so-to-speak, so that I could keep the “rain” away which means if I kept the port, maybe I’d never need again.  Ovarian cancer has a high recurrence rate and I was late-stage when I was originally diagnosed so it’s very possible that it will come back.  

However, I have decided that 2014 is the year for change.  Since I put so much effort into staring down cancer, after treatment was completed, I started getting involved in advocacy through the Ovarian Cancer National Alliance (see my previous post with former Miss USA Olivia Culpo).  Now that my port is out, I feel even more passion for continuing the advocacy efforts to educate women, medical professionals, Capitol Hill, and anyone else who will listen about the signs, symptoms, and unquestionable need for an early detection test for ovarian cancer.

This is why my efforts will now be with the GrassTops Program through the Ovarian Cancer National Alliance. I have enjoyed being a part of the Ovarian Cancer National Alliance’s annual conference for the last two years.  This new opportunity with GrassTops will allow me to continue to speak for young girls, teenagers, and women of all ages who have lost their lives to this disease (including my grandmother) as well as to speak for those who are still in the fight and those who have not yet been diagnosed.  I am committing the next two years to help the Alliance raise awareness and research dollars.

Since this is my year for change, I have also been blessed with a charity fundraising slot in the 2014 Boston Marathon (as a former resident, Boston is my adopted hometown).  Boston is a HUGE marathon and has always been a goal of mine.  I completed five marathons prior to my cancer diagnosis.  The Boston Marathon will my first marathon post-cancer and post-chemo.  My body is built for endurance, not speed, so I will never be a time qualifier yet I was truly lucky to gain a charity slot for South Boston Neighborhood House a.k.a. The Ollie.

I feel strong – both physically and emotionally.  I cannot dwell on the probability of recurrence.  I need to enjoy TODAY.  I will not let cancer sap any more of my happiness nor will I be saddled with “what-ifs.”   It’s time to move forward and put cancer in the rear-view mirror. One day recently I awoke and said, “I’m all done with this mediport.”  So out it came last week and I have no regrets.  I am so excited to be healthy enough to be training for another marathon. Boston will be a homecoming of sorts for me and it will be a dream come true.

This is the year for change – the Boston Marathon is a life-long dream and I will realize that dream very soon. If you are able to help me reach my fundraising goal for South Boston Neighborhood House, please do so through this link.. Even $10 will go a long way to help this fantastic organization that does so much to support the South Boston community.  Thank you in advance!!!  I also dream of an early detection test for ovarian cancer.  I will continue the fight for all women. I will do all of this without any more mediports in me.  So long, cancer!!

ovarian-cancer-ribbon2.jpg

 

My Favorite Charitable Event

So it’s definitely been a while since I’ve posted anything and I apologize for the long wait. I have been busy with work and raising my son and trying my darndest to stay in remission (so far, so good!).  Last weekend, I had the opportunity to participate in The Dempsey Challenge.  This was my second year doing so.  This event runs all weekend with the running events being held on Saturday and the biking events are held on Sunday.  In addition, there’s a ton of activities to participate in leading up to the big weekend which are all totally optional but they really add to the spirit of this very sincere and generous cause.  Let me backtrack just a bit…

When I was diagnosed with ovarian cancer two years ago, I did not know any survivors of this insidious disease.  My own grandmother had passed away from it nearly 14 years prior to my diagnosis.  It’s known as The Silent Killer for a reason.  I didn’t want this cancer to take my life and prevent me from raising my son and seeing him graduate high school and college and see the man that he will become.

I was careful in my searches on the internet when I was first diagnosed because of all the terrible stuff out there about this cancer. I tried to learn about the disease but didn’t go too deep since I didn’t want to scare myself.  I realize that’s naive but that’s what worked for me at the time.  What I really wanted was to know someone who was a survivor and thus began my search on the internet for any survivors in my area.  The only one that I was able to find was Amanda Dempsey, mother of three.  Not only was she a survivor, she had battled several times and was still around.  So this is what I held onto – a woman that I had never met but she lives in my area.  I “knew” someone who had battled ovarian cancer and won so this added some fuel to my fight.

Since there was no cancer-specific support group in my area, I turned to the internet and was blessed to find some very giving women who offered loads of support in a safe and confidential setting even though they’d never met me.  With their generous sharing of information, I was able to gain enormous knowledge and emotional support from survivors who told me that I was more than a statistic.  Between them and the support of my friends, family, and co-workers, I was able to navigate through the surgeries, chemo, and all those lousy side effects.  During this time, I had heard that there was a cancer support center that was being planned in the central part of the state and it was inspired by the same woman who inspired me – Amanda Dempsey.  This was good news to me since it sounded like it would be a place that was very much needed but didn’t exist yet.  I wondered if it would be too good to be true but I kept my hopes up.

In the meantime, thanks to these generous women on the internet, I learned of the annual Ovarian Cancer National Alliance that is held each July in Washington, DC.  In July 2012, I went to DC and was fortunate to meet some of these wonderful ladies in person.  It truly gave me a passion to help others and once I came home,  I decided that I wanted to participate in a fundraiser for this new cancer center that I had heard about. The fundraiser is called the The Dempsey Challenge and all of the money raised goes to the Patrick Dempsey Center for Cancer Hope and Healing.   I have had the pleasure of going to the Center which offers support, gentle exercise, massage, information, and a lot of hugs for all cancer patients and their families and caregivers regardless of the type of cancer one has.  The bonus:  the Center does not charge anyone for any of the services they offer.  It is truly a safe and welcoming place to go to heal.  Having cancer leaves us shunned at times because those not familiar with the disease just either stay away or don’t know what to say to a person who has no hair and a swollen chemo face.  This is NOT the case at the Center.  Everyone is accepted and valued and they provide so much support and information.

The Dempsey Challenge is a truly wonderful event to participate in.  There’s no competition (the events are not officially timed) and the generous support of all the participants and volunteers is top-notch. Survivors are recognized and sincerely welcomed and celebrated (just like they are at the Center).  Not one cent that is raised by the participants goes towards putting on the event.  They have a lot of sponsors who generously cover all of the costs for the weekend which is a lot of fun for families, survivors, and caregivers.  It is by far one of the best organized events I have ever participated in.  This is the second year that I have participated and it’s something that I plan on being a part of every year.

It is also at this fundraiser that I have had the pleasure of seeing the beautiful Amanda Dempsey, ovarian cancer survivor and mother of 3. She’s such a fighter and I doubt she knows how many people she inspires.  She inspires me each and every day.

To learn more about the Challenge and to donate, please go to:  The Patrick Dempsey Center for Cancer Hope & Healing

To learn more about this wonderful place that was inspired by Amanda, please check out this video:

 

Some tips on preparing food for a cancer patient

So you want to prepare some food for a cancer patient?  This can present some unique challenges if you have never been through chemo yourself. If you have been through it, this will likely be a refresher for you.  I am very much in favor of someone preparing some meals but it is very important to follow some guidelines.

1.) WASH ALL PRODUCE BEFORE CUTTING IT.  Chemotherapy compromises the immune system so it is vital that all produce be washed thoroughly before cutting it. It should be washed with a food-safe wash (a vinegar and water combination works very well).  If produce is cut first and then washed, then the bacteria on the outside has already been spread to the inside by way of the knife and it is much harder to clean.  Many oncologists discourage their patients from eating raw produce due to the difficulty in cleaning it properly.  Even if it’s going to be cooked, it is very important that the produce is properly cleaned.  If you purchased ‘triple washed’ produce, wash it again.  That stuff is usually washed in some type of bleaching chemicals. Also, do not use ingredients from any sort of buffet (e.g., salad bar, olive bar, etc.) in meals meant for a chemo patient.  The sanitation is a very real concern and it’s not worth the risk.

2.) Prepare smaller meals.  Chemotherapy wreaks havoc on one’s appetite.  It is recommended by many oncologists that patients eat more frequent but smaller meals.  This helps to provide energy and helps to stave off nausea.  Rather than preparing a big tray of lasagna, prepare a couple of smaller pans instead.  This way, the patient can heat up a smaller portion.  I recommend this even if the patient has family because chemo messes with the taste buds and it is likely that not everyone will eat the same food in the house at the same time.  In addition, fatigue sets in the more chemo a patient has and a smaller pan is easier to carry and maneuver.  Honestly, my last two cycles of chemo wore me out so much that I couldn’t even carry my laptop.  My son had to put it in the car and when I got to work, I had to request help from co-workers to carry it inside.  A big casserole or lasagna would not have been an option for me to move from the freezer to the oven.

3.) If the chemo has deadened the taste buds, go for texture.  I chose toasted pecans, almonds, walnuts, and granola.  This gave me some sense of being able to discern something while eating.  Make a batch of homemade granola and package it in small containers or baggies.  If texture isn’t appealing, it may be helpful to include some type of acidic drizzle on the side like a zippy vinaigrette.  I would drizzle a bit of vinegar on top of my soup or sautéed vegetables so that I could taste a smidge of something.

4.) Be careful with spices.  I grew up in San Antonio so I always liked spicy food.  However, during chemo, I had to tone it way down even though I had trouble tasting food.  Spices were hard on my stomach so you may want to tone down the curry and jalapeños.  You can get creative and instead of adding them to the food item itself, maybe make a cracker or biscuit with a bit of spice in it that can be served on the side.  This way,  the person can break off a piece and if it doesn’t sit well, the entire meal isn’t a waste.

Some other tips to keep in mind:

Label everything.  List the ingredients and how to prepare it (temperature, time, etc.).  Even if seems logical that chicken noodle casserole has chicken and noodles in it, there may be other ingredients in it that may be a concern to the patient over time like some spices or garlic or even milk (chemo makes it hard for some people to break down milk products).  For me, I couldn’t stand peanut butter or chocolate.  I didn’t have an allergy but I really could not stand the taste of either and I had loved both prior to chemo.  And even though I’ve made lasagna all my life, my lasagna may not be made the same way you would make it. Spell it all out and how to warm it/cook it/prepare it.  This will also allow the caregivers who are cooking-challenged as well the kids to be able to help.

Think outside the box for meals:

  • Make a soup but deconstruct it if needed.  For example, make a broth-based soup.  Cook pasta separately, drain, and drizzle with olive oil to keep it from sticking together.  Package the cooked pasta in a ziploc baggie, put the soup in a separate container, and have some crostini or croutons in another baggie. (I mention broth-based to reiterate that milk may be a problem for the person undergoing chemo.)
  • Make the fixins for a burger quesadilla.  Stay with me here because this is actually fun and tasty.  Cook up the ground meat and/or veggies (no need to make patties).  Shred some cheese, lettuce, tomatoes, etc.  Package the meat in one container, the toppings in another, and add a bag of tortillas.  All that needs to be done to prepare them is to warm up the meat/cooked veggies (the microwave will do just fine) and then load the tortilla with the ingredients, fold it in half, and cook it in a skillet on both sides until the cheese melts.  Everyone can fix it his/her own way.
  • Instead of making a big 3 lb meatloaf, make meatloaf muffins by cooking the meatloaf in muffin tins instead.  Make a batch of scalloped potatoes the same way.  Pop ’em out, put them on a baking sheet, and freeze as individuals.  They can then be placed in ziploc baggies and labeled accordingly.  Smaller portions are great and kids will love the smaller size, too.

Sweets are great in small doses. For me, I loved apple crisp because I could detect the slightest hint of cinnamon and the crunchy topping was great even though my taste buds were on the fritz thanks to Taxol.  Keep them small, e.g., smaller cookies or slices of pies/tarts. One of my gal pals made triple chocolate cookies with a cake mix and my son loved them so there’s no need to spend lots of time making things from scratch if that’s not your thing.

If you can afford it, please purchase organic and local food.  Organic is better for all of us and if it’s local, the food will be fresher and is oftentimes a much better quality than you will find in the big grocery stores.

Hydration and protein are very important.  Chemo is terrible on the kidneys and it also breaks down healthy cells so hydration and protein are important at every meal if possible.  Water tasted terrible to me but I found that a mild coconut water was tolerable.  If cooking isn’t your thing, buy some small boxes of coconut water or your patient’s beverage of choice.  Include some small protein-packed smoothies (Odwalla and Naked make some good ones) that can be kept in the refrigerator.

Lastly, I want to say how grateful I was to have food brought to my house. Several people pitched in and provided meals for us throughout my chemo  and having those meals ready to go with minimal prep was truly a blessing.  We preferred those to the heavily processed frozen foods in the grocery store.  Don’t ask for permission – just do it.  Whatever you decide to prepare or purchase will be very much appreciated by the patient and caregivers.

Charlie Brown

What they never told me

When I was diagnosed with ovarian cancer, I had the benefit (if you can call it that) of having seen every woman in my family battle breast cancer along with seeing my step-dad battle colon cancer.  Therefore, I was blessed with tons of support from family members who had been through it (some more than one time).  I was given tips and tricks for dealing with chemo, hair loss, foods to eat, etc.  I am also blessed by having the support of friends, co-workers, and my bosses as I near the end of my routine treatments. With any luck, I will stay in remission. However, there are things that I have learned during my journey and I’d like to share some of them in case anyone may benefit from them.

No one ever told me (in no particular order):

  • Some of my friends and family would distance themselves and while others I didn’t expect would be a source of support.
  • How unimportant some things are when my life was on the line.
  •  I would have a ‘front butt’ after tumor debulking surgery and that my belly button would be moved in the process.
  • My incision from the surgery would not heal right away and I would end up with a seroma.
  •  I would find a new use for maxi-pads when my seroma started gushing on a Saturday.
  •  I would teach oncology nurses and a resident how to ‘wick’ a seroma.
  •  Potential side effects of chemo included removing my ‘filter’ when I had something to say.
  • How nice it was to not have hair.  I could not have a ‘bad hair day.’ I went from 20 minute showers – shampoo, conditioner, shave, rinse out the conditioner – to being able to shower in 90 seconds flat.  I had no hair to style, no eyebrows to pluck, and no lashes to put mascara on so I had more time to sleep.
  • I would save money because I was not buying hair products.
  • I would look in the mirror and not recognize myself.
  • How really big my head is.
  • It’s o.k. to sleep at odd hours.
  • I could stay clear of negative people.
  • It’s o.k. to go to the store in my pajamas.
  • I could do things I want to do and not feel guilty.
  • Once I was in remission, people would stop calling me, emailing me, and asking me how I am doing.
  • Being diagnosed with late stage cancer doesn’t mean terminal cancer.
  • Being ‘sick and tired’ takes on a whole new meaning.
  • Losing energy and stamina so quickly when chemo started did not mean that it would come back as quickly.  In fact, it takes a very long time to return.
  • Complete strangers would pray for me.
  • I could sweat so much.
  • My fight against cancer would serve as inspiration to some people to eat healthier and to exercise.
  • I could have pain from numbness.
  • I’d be labeled for the rest of my life. My own PCP has the sphincter police answer his phone and I have to be assertive to get in for a regular visit.
  • About the kindness of strangers, random acts of kindness, & the power of prayer. I can truly feel those around me.
  • If there’s ‘a small chance’ of something unexpected that might happen, it would happen to me.
  • Some people stared & others made no eye contact when I wore a scarf.
  • It’s o.k. to ask for help.
  • I would go to a conference where I knew absolutely no one and leave with many friends.
  • I would go to Capitol Hill to speak with the staff of U.S. Senators and Congress to advocate for research dollars and awareness of ovarian cancer.
  • I would meet Miss U.S.A.
  • I would complete a half marathon exactly one year after my tumor debulking surgery.
  • Being on a dance floor with a boatload of cancer survivors belting out Gloria Gaynor’s “I Will Survive” would be one of my most-treasured memories.
  • There are no more bad days – there are now only good days and great days.  As far as I’m concerned, the only bad day I’ll have is the day the good Lord takes me to His home.
  • My teenage son would not be embarrassed to be around his bald mom and would also wear a teal ‘Fight Like A Girl’ t-shirt to school on my chemo days each week for 18 weeks straight.
  • My retired Navy sweetie would keep his head shaved in support of me, also wear a teal ‘Fight Like A Girl’ t-shirt on my chemo days, and be my biggest advocate.
  • I would start a blog – for myself as a form of therapy – and that it would be read around the world and help people.
  • I hadn’t truly lived until I realized I might not be around to see my son grow up.
  • I’m stronger than I knew.

These are just a few of the many things that I’ve learned.  If you are a survivor, I encourage you to share your thoughts here as well. We all have something to offer to help others who are on this journey with this insidious disease.

Video

Getting outside of my comfort zone

This past July, I had the privilege of attending the 15th annual Ovarian Cancer National Alliance conference in Washington, D.C.  I did not know a single person before going but I wanted to step outside my comfort zone and see what this conference was all about since I’d heard great things about previous ones.  The weekend was full of information about clinical trials, the latest research, and loads and loads of support from numerous organizations as well as fellow survivors.  I had the honor of meeting – in person – some of my “teal sisters” that I’d met through an online support group.  The energy and positive vibe throughout the weekend was fantastic.  I learned so much from other survivors from how to deal with side effects to how to deal with stress to nutrition guidelines to getting involved in advocacy.

We had fabulous speakers including the physicians with the latest research, people who spoke about their personal journeys or the journeys of their family members, and Jack Andraka also spoke to us.  He is the 15-year old who won the Intel award for developing a simple test (which only costs 3 cents) that has so far been 100% accurate in detecting pancreatic, ovarian, and lung cancers.  His test hasn’t yet been entered into human trials but he hopes to do that soon. He is a down-to-earth person who truly wants to find an early detection test for cancer and he may have found it.  I, for one, am very grateful for his research. If you would like to see a bit more about him,  please click the link: Jack Andraka Interview with Diane Sawyer   Our keynote speaker was Miss USA, Olivia Culpo, who had been crowned a few weeks before the conference.  Her mission for this year is to raise awareness about breast and ovarian cancers.  She is a very well-spoken, kind, and intelligent young woman who will work tirelessly to promote this awareness.

In conjunction with the conference, I participated in Advocacy Day. I went to Capitol Hill with about 70 other women and families – including Miss USA – to advocate for research dollars and to advocate for September to be officially recognized as Ovarian Cancer Awareness Month.  This was a totally new experience for me but it was very gratifying.  I met with the staff members of the Senators and Congresswoman from my state.  They were very receptive to my cause and listened to my story with concern.  I told them that mortality rates have not changed in the last 40 years for women dealing with ovarian cancer and that this cancer affects all ages including 3-year old girls, teenagers, women in their 20s, etc.  This is not an ‘older’ woman’s cancer.  The statistics are grim but hopefully, in some small way, I hope I’ve made a difference to raise awareness and get research dollars to find an early detection test for this insidious disease.

I felt like I had met a whole new branch on my family tree during this trip and I was so bummed when the conference ended because I really enjoyed meeting everyone and sharing our experiences.   Therefore, I jumped at the chance to attend a smaller conference in Boston this weekend that was organized by Ovations for the Cure.  Again, I went to the conference not knowing anyone. (As it turns out, I met up with a woman I’d met at the DC conference and there was also a woman from my church who attended.) It was a one-day event but it also provided information and I again had the opportunity to meet other survivors.  There was no cost for this event which was held at the Four Seasons in Boston.  The conference was very informative and we were treated to a fabulous lunch in Aujourd’hui. After all the poking, prodding, needles, surgeries, chemicals, etc., of the past year, it was so refreshing to have had this opportunity to participate in a local event and have lunch in a 5-star restaurant at no cost to me.

What I learned at both conferences is that there are a lot of women living with ovarian cancer.  I want to stress the word LIVING.  These women and their families have such positive attitudes and they do not let anyone rain on their parades.  They are intelligent women who ask intelligent questions and they will keep fighting to beat cancer.  They will find the best clinical trial or the ‘right’ oncologist to work with to get into remission. Some are fighting for their 2nd, 3rd, and 4th remissions.  They are the most open, considerate, and generous people that I have met.

Ironically, getting outside my comfort zone and meeting cancer survivors has provided a great deal of comfort to me.   My goal is to continue to help women and provide support just like the women who have helped me.  Yes, we are statistics but we don’t let statistics define us. We will beat the odds!

Advocacy Day 2012

Boston Lunch Menu

Miss USA Olivia Culpo and me at the OCNA conference

Previous Older Entries Next Newer Entries

%d bloggers like this: